Meds, no meds?

Are drugs the right treatment for Hyperprolactinemia?That’s the question. The side effects from pretty much any drug available to treat hyperprolactinemia, are not encouraging. From what I read on different forums on the web, one of the most talked about topics is whether to start taking medication or not. The information leaflet is not pleasant reading.

From my own experience: I actually don’t know if I had side effects. If it’s possible to have side effects several years later then I did. But my doctor told me that side effects only show within the first couple of months… I don’t know if this is true. But now I think my deteriorating health could also be due to long term high levels of prolactin. A problem any doctor never thought to address. From despair spurred action and I gathered all information about my condition from three different hospitals (they don’t make it easy). It turned out that my prolactin levels had not changed for years. Different doctors just treated me according to the most recent prolactin level, never realizing my levels weren’t going down.

So what I’m saying is that hyperprolactinemia must be treated but you need to pay attention. Take part and be actively involved. Learn from my mistake and don’t be a passive patient. I’m not against medication because it does help a lot of people with hyperprolactinemia. This published paper, regarding guidelines for managing prolactinomas, indicates that up to 80% respond to the treatment; with a 25% reduction in tumor size and most experience a 50% reduction in prolactin levels. Now you might be thinking “well, is that good enough?” I don’t think so. But my doctors put on this puzzled face when I ask questions, as if I’m the only one who isn’t responding well to treatment. In contrast to when I search the internet it seems like everyone is having problems with their treatment. What is the truth? I would really like to look into that and get back to you when I find some more trustworthy info.

On the question: meds, no meds? It will not hurt you to try. The initial doses are small to prevent side effects. I have been medicated for so many years now I think I have developed a thick skin and an attitude of “I don’t care!” I need to explore other alternative ways before I go back on medication. But I promise you I’ll tell you about any success as well as failure. For thoughts on alternative treatment you can read my post about the Ketogenic diet.

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